Well, here we are on day 5 of my new lower dose of Temodar. I’ve survived to fight another day.
I’ve had only moments of nausea. I stayed on top of my anti-nausea meds, but it’s not clear how badly I needed them. I ate and cooked meals for my family with little to no difficulty. I planned and shopped for easy dinners to make sure I wasn’t trying to figure out what to cook while I had no energy or felt like hurling at the smell of any food within arms reach. This meant that we ate less than whole foods this week (unless you consider vegan pigs-in-a-blanket whole, non-processed food), but we’ll make up for it next week.
I am tired. I feel like I need about 3 hours more sleep each day. But honestly, it’s not nearly as bad as with the larger dose. I’ve been able to drive my kids to and from camp and other activities. I ran a few errands. I went to yoga class – with the inspiring older ladies and gentlemen who continue to show their aging, more fragile bodies that they’re still in charge, dammit. We’ll see how I feel this afternoon and tomorrow as the cumulative effect settles in.
I think I can live with this dose quite easily, though. I don’t think it would stop me from taking a trip – as long as it’s not to run a marathon or backpack into the Sierras. I can still live my life and care for my family. I am less dependent on others, so they can continue to live their lives as well. I feel more like myself, even if it’s a more tired, chemo-brained version of myself.
We’ll see what this lower dose does to my platelets and whether it continues to help keep the beast at bay. Fingers crossed.