Day 5 – New Dosage

Well, here we are on day 5 of my new lower dose of Temodar. I’ve survived to fight another day.

I’ve had only moments of nausea. I stayed on top of my anti-nausea meds, but it’s not clear how badly I needed them. I ate and cooked meals for my family with little to no difficulty. I planned and shopped for easy dinners to make sure I wasn’t trying to figure out what to cook while I had no energy or felt like hurling at the smell of any food within arms reach. This meant that we ate less than whole foods this week (unless you consider vegan pigs-in-a-blanket whole, non-processed food), but we’ll make up for it next week.

I am tired. I feel like I need about 3 hours more sleep each day. But honestly, it’s not nearly as bad as with the larger dose. I’ve been able to drive my kids to and from camp and other activities. I ran a few errands. I went to yoga class – with the inspiring older ladies and gentlemen who continue to show their aging, more fragile bodies that they’re still in charge, dammit. We’ll see how I feel this afternoon and tomorrow as the cumulative effect settles in.

I think I can live with this dose quite easily, though. I don’t think it would stop me from taking a trip – as long as it’s not to run a marathon or backpack into the Sierras. I can still live my life and care for my family. I am less dependent on others, so they can continue to live their lives as well. I feel more like myself, even if it’s a more tired, chemo-brained version of myself.

We’ll see what this lower dose does to my platelets and whether it continues to help keep the beast at bay. Fingers crossed.

3 thoughts on “Day 5 – New Dosage

  1. So glad you have some energy! I do too, but I start my 5/23 the week of the 15th. Got the okay to take a trip to Tahoe next week so just going to find a tree to sit under and watch the golfers go by and breathe the fresh air while I can. I’m really hoping it lifts my hubby’s spirits. He’s been in such a funk, but then again, my diagnosis is only 2 months out and I think it’s just now struck him like a ton of bricks. *sigh* I’m so glad I found your blog! I love reading it and I hope to write more of my own today or tomorrow. Have a great one!

  2. Happy to hear this play with the balance between strengthening your own immunology and quality of life and your chemo-blaster is helping you feel much better. One of my doctors once said to me that more does not always mean better offense…complicated. Thinking of you, and hoping this balance works well for you.

  3. Dearest , Treasure the life of the 10 year old girl! I always felt it was one of the “Best of Times” Always sending you love

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