Good News, Bad News

I had my MRI on Wednesday this week – my first in the 12 week interval schedule. Given the hospital construction, things are a little discombobulated. The MRI machine I was taken to was in a trailer in the parking lot. I felt like I was being brought into one of those cheesy traveling carnival rides – like a fun house. Otherwise, it was the essentially the same experience as all of my other MRIs.

There were some changes in my brain since my last MRI, but nothing concerning – they assume it’s still healing and scar tissue and not new tumor growth. So there’s the good news.

I was so excited that I decided to celebrate by having a seizure and spending the night in the hospital.

Apparently my seizure aura (warning that a seizure is coming) really IS expressive aphasia. For those of you who don’t know, that’s when I can’t get the words from my brain to my mouth to speak or hands to write. (I don’t remember any of this, mind you, but it’s what I was told happened.) I went inside, lay down and could speak again. Then I couldn’t. When I got up to go to Stanford (my husband driving), I had a seizure. I go all out with mine – full grand mal. Then I had another…and another. An ambulance was called and I had another in the truck as I was carted off to the closest emergency room. Tests, drugs, and some more drugs later I was determined to be healthy – essentially no strokes or brain bleeds and since I’d just gotten my MRI results, we knew the tumor wasn’t back. My anti-seizure medicine was increased. I was kept for observation overnight and had the joy of being woken up from my drug induced state every couple of hours all night long.

There is some speculation about why I had a seizure since I didn’t miss any doses of my meds and we had proof the tumor wasn’t back. Exhaustion, stress, migraine were all brought up as possible triggers. I refrained from saying, ‘that giant hole in my brain doesn’t have any impact?’ One question I had was why my aphasia would go away when I lay down. I don’t think we got an answer. I don’t remember most of those 24 hours, to be honest.

Eventually, they decided to set me free. I’ve now come home to rest, recover (every muscle in my body is sore) and get my head around losing my freedom of driving again. Anyone want to carpool?

We see my Neuro-oncologist on Wednesday, so we’ll hopefully find out more then about what this exciting event does to our treatment plan.

11 thoughts on “Good News, Bad News

  1. Surely in the handbook of celebrations there must be better options to be joyous after such good news. Seizures probably go under the heading, “Alternative Options” ! Despite the seizure, I am grateful for your good news and hope positive life experiences continue over future weeks.

    I am having a 6 month follow-up MRI scan tomorrow (Monday) following the “clean result” I had in March. I am hoping to have a similar positive outcome, but planning to celebrate in slightly different ways! ;~)

    Best Wishes,

      • We had a wonderful day – fantastic news on the scan front (no change since March, no indication of tumour) and an offer we’ve put on a house have been accepted! It will be a glass of bubbly with some good friends tonight (we’ll leave the girls to play with their friends!).
        Hope you are well and kicked this seizure habit after positive events!

  2. Yay on the stable MRI, but the seizure part just stinks! >:-( On the bright side, you’re so ucky you only had to stay one day in the hospital. I need your docs! Seems every time I go, I need to stay 10 days at a minimum, like it’s a requirement or something. I’m glad you’re safe and sound, Karyn. No seizures allowed behind the wheel, in the tub (hi!), etc. Get some rest and take care of yourself. Oh, and if you ever find someone who wants to carpool 100% – 0% of the time, I need ’em too! 😉
    ~Signed another DMV reject~

    • It helps to shorten your stays when you have someone asking when you can go home every 30 minutes or so. Eventually, they just give in and let you go – as long as you can show them you can pee and complete a sentence coherently.

  3. I am in tears reading your writing. I am fortunate to get to check-in with you every few weeks in person. I see your emotions, your health, and your acceptance of what is going on blooming. And then there are these completely sucky setbacks to set the record straight. About that carpool thing… anytime you need my aid I am here to support you. And, thank God you weren’t driving!

  4. So happy to hear about the MRI, that is truly fantastic but next time just celebrate with a glass of wine in the driveway! Thinking about you a lot and looking forward to seeing you in Nov.

  5. Pingback: Fear and Loathing in My Brain | everydayleft

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