I’ve decided that having seizures is stupid. I didn’t sign up for it and I’d like to return that part of the Brain Cancer Special. Wait…No…I’d actually just like a full refund. I’d like to return the whole package, please.
I had my vaccine shots yesterday (or we hope they are, anyway) and met with my Neuro-oncologist. He’s got a resident in rotation who is VERY thorough, sharing a lot of great information. We end up having longer visits, but we leave feeling like we’ve learned something.
What we learned yesterday:
1. What I experienced last week was Status Epilepticus. The scary reality is that IT may kill me before the brain cancer does. I know that sounds morbid, but it’s true. I now have emergency medicine and everyone in the house, friends, neighbors will be taught what to do if I have a seizure.
2. My Expressive Aphasia is likely a focal seizure rather than an aura. I’d suspected that may be the case, but the doctors agree. Since it seems to happen first, I find that every once in a while I’ll talk to myself out loud, just to make sure I can.
3. I likely had seizures because I’d been so anxious about the MRI and had been sleeping poorly. It’s doubtful that the 1/4 of a pickle martini I drank triggered them. I’m now back on an 8 week MRI cycle to reduce the anxiety.
4. There MAY be a correlation between migraine and seizure – but it’s very debatable, kind of like the chicken and the egg.
It’s taking longer than I’d expected to recover from this event. It may be adjusting to the new medication doses just as much as the seizures themselves. My energy level is low and I’m a little slower mentally – no quick retorts from me this week. Just getting my head around this new development is a little overwhelming and I may start wearing a helmet in addition to carrying Ativan in my pocket 24/7.
In other news: My vaccine shot site is itchy – enough to wake me up. The dog is still itchy – enough to wake me up. And I feel like I’m fighting a fall cold – but I may just be run down and recovering. Tea with lemon, honey, and cinnamon tasted delicious last night and I feel a little better this morning, so hopefully I’ll bounce back at any moment.
My mom is here helping out and I can’t express how much we appreciate her. When she leaves, we’ll be getting around on bikes – so I’m shopping for saddle bags.