2 Year Anniversary

Well, I did it. I beat the average survival statistic for a patient with a Glioblastoma Multiforme – the deadliest of all the brain tumors. I have brain cancer thanks to the mysterious golf ball size of aggressive malignant cells that grew in my brain. It’s been 2 years since that beast was removed by my brilliant neurosurgeon.

In those 2 years, I’ve gone through chemo and radiation treatments (which ironically has a risk of creating brain tumors) and began a clinical trial intended to train my body to fight the cancer. I’ve had 2 seizures (not counting the first) that have landed me in a hospital bed – the second one being life threatening. I spent months without driving privileges and still managed to get my kids to school and go to the grocery store thanks to my mom and my kind neighbors. My mom’s love and caring have provided my family with a consistent ‘normal’ life and have allowed me to focus on healing and fighting. I have grown even more fond of my neighbors and our spontaneous driveway parties and planned outdoor movie nights. I’ve napped, a lot. I went to New York with my husband. I’ve witnessed his courage, strength and love each and every day. I went to New York, London, and Paris with my family. I’ve read numerous books – most of them good. I met Diana Gabaldon and got her autograph. I lived through a kitchen remodel (not recommended while going through treatment.) I adopted a dog who is both sweet and crazy needy. I’ve watched my children continue to grow and thrive. My son’s guitar skills, love of soccer, creativity, ingenuity and love for some adventure amaze me every day. My daughter’s kindness, persistence at resolving social conflicts, strength in the face of adversity (like soccer ball kicks to her face), her natural skills in caring for young children, and her love of books and learning make my heart swell with pride. I have so many more things to be grateful for as I’ve attempted to live every day left in my life with joy and appreciation for the moments I’ve been blessed to experience in my uncertain future.

But the fight continues on. I’m fighting to still be here to celebrate my 4 year anniversary and my 6 year anniversary and so on…

Thank you all for the love, support, prayers and healing energy you’ve been sending my way over the last 2 years. They’ve gotten me to this point. I’d appreciate the continuing support to get to another anniversary.

As we continue the debate began by Brittany Maynard’s decision to move to a state that supports ‘die with dignity’ laws, let’s not forget the thousands of other people fighting this horrible disease and other types of brain tumors. We should also be discussing what can be done to develop new treatments and search for a cure so we don’t have to think or make decisions about how to relieve our own suffering in our last moments of life. Many of us with GBM’s have survived for extended periods of time, even if we received grim and specific prediction of the time we’ve got left. Fight on and see what miracles arrive and do your part to help others live longer in the future.

If you feel compelled to help focus on the brain tumor element of this story (not saying the national dialogue around ‘die with dignity’ is unworthy or less important), make a donation to the National Brain Tumor Association or any other organization of your choice that helps support research for treatments and cures, support for families and patients, and raise awareness of the other side of Brittany’s story.

 

12 thoughts on “2 Year Anniversary

  1. Thrilled the Universe continues to be graced with your presence. Continually sending good thoughts and prayers so that we’ll all be reading Everydayleft on your 20th anniversary and beyond!

  2. I am very happy to hear this. 🙂 I don’t know you personally, but I do know how hard it is on someone to have GBM. My mom died of one in July 2011. Keep beating the odds! Very happy for you. 🙂

  3. Congratulations, Karyn!! I’m so happy for your recovery and the gift of time that you’ve had with your family. You Wilders as a group have always impressed me. I’ll continue to keep you all in my prayers and I pray that you’ll have many anniversaries to celebrate ahead.

  4. During each day all of us are confronted with the joys and hardships of this thing we call life. Reading the newspapers, political blogs and news sites, or watching the glowing boob-tube one would think we as a species are going to hell in a hand-basket (never understood that phrase – but it seemed apropos here.)

    At the end of the day when I crawl in bed some of these ungodly situations on our planet come to the forefront of my mind. But then I push them back. I push them back because there are so many things that we have in this world that are worth our time, worth our sacrifice; things that are worthy of experiencing those human feelings of joy and tranquility. It takes a fellow cancer traveler to understand this.

    My thoughts are with you, your children and Todd. No one wants to travel this road but if they do, as we have, I sincerely hope they have your stamina, fight and courage. My cancer is not nearly as invasive as yours and, like you, I am in a state of remission. It is hard to look in the mirror and know if my own courage was as strong as yours during my treatments. I hope so. All I remember was the “discomfort” (don’t you just love that word when they use it to describe your possible reactions to chemo?)

    Maintain that faith you have in yourself. You have more stamina, courage and strength than all the armies of the world combined.

  5. My thoughts are with you and I am sending positivity and strength your way. My father passed away from GBM–I wish more than anything we could have saved him. I support brain cancer research so future patients will have more options and chances.

    • Congratulations on your 2 year Anniversary. I was diagnosed 1/10/2014 after they removed an apple size tumor from my right frontal lobe. I am already planning my one year party!!! And many more !!!
      ◄ 1 Timothy 6:12 ►I
      New International Version
      Fight the good fight of the faith. Take hold of the eternal life to which you were called when you made your good confession in the presence of many witnesses.

  6. Hello Karyn,
    My belated congratulations on your anniversary. I’m sure it’s some added joy in this holiday season.

    I’ve just had my own one-year anniversary of this sort, and am very grateful for the health that I am enjoying.

    Best wishes to yourself, Todd, and the kids-

    Warren V

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