Husband reporter back with a much overdue post. Many of you have been asking how Karyn is doing, and longing for an update on her progress. You’re nice and thoughtful like that. The plan was that she would update you herself in her normal eloquent fashion.
While waiting for her to tell you in her own words, she lost those words.
Post surgery, Karyn was doing amazingly well (well, not really “amazing” when you consider it’s Karyn we’re talking about). Then, as she was getting stronger, speaking became difficult. It was gradual, but she soon wasn’t able to say more than a couple words before those words simply wouldn’t come out. Unfortunately, this also made writing, typing and even reading difficult-to-impossible.
The logical explanation, and the one we set out to treat, was this was caused by post-surgical inflammation. Karyn’s steroid (anti-inflmamatory) dose was increased and we all figured language faculties would quickly return to normal. They did not.
Karyn needs to have another surgery. Her language issues are, according to yesterday’s MRI, being caused by a build up of undetermined fluid in the brain. The doctors say it’s unlikely that it’s blood, and it’s not consistent with tumor, which is good news. It could be fluid from an infection, and she’s not presenting with a fever or other symptoms because steroids and possibly her past vaccine trials have caused her immune system to respond “asymptomatically.”
The plan is to insert a needle, remove as much of that fluid as they can and then test it. Regardless of what it is, it has to come out.
We’ll go in later tonight for a pre-op meeting. Even though “draining fluid” sounds easy, it’s still surgery when you’re going into the skull and that requires anesthesia and all the trimmings. Surgery will be tomorrow, but the time isn’t yet set as she’s on a wait list.
As we wait, we’ll take whatever positive thoughts, love and support you have lying around.
Thanks and love, Todd