Husband reporter here with the latest on Karyn. It’s been a while since we we shared an update, so let me catch everyone up.
When we last left off, Karyn had finished radiation treatments and was feeling like garbage. That continued until about… well… this week. There were good moments here and there but extreme fatigue, difficulty speaking and an inability to deal with noise and activity ruled the day. Rather than get better, it actually got worse over time. We thought it was the flu, and there’s still a good possibility that she had that as well. (Holy insult to injury, Batman!) But, the overall health trend was down, not up, and we were at a loss as to why or what to do.
Recently, we found out it was probably because she got off steroids, which she was taking to manage inter-cranial swelling. Karyn took them for long enough that her body may have forgotten how to make its own (which bodies do naturally).
Oh what a difference a little Decadron makes!
Steroids have their own lousy side effects, but getting back on them this week has brought Karyn back in a big way. She’s sleeping less, eating more and much more herself. Her ability to put up with indoor flying of a remote-controlled helicopter by our newly nine-year-old son is damned impressive on its own! It’s great to have her back!
In the middle of all this was an MRI in early February. That showed little change from the one prior to radiation, which means Chernobyling her head helped prevent new growth. There’ll be another MRI in a month, and we are optimistic that it will look as good or better.
Now, Karyn will hurt me for this, but I’m going to do it anyway. (I can feel the cold stare and punch in the arm already… ow.)
Karyn has wondered at different times what this site means to people. She hasn’t said it in so many words, but the question that seems to come up from time to time is, “Why do people read this?”
So, I’d like to ask you to please share below* what you get from everydayleft? Why do you read the posts? What does this site mean to you?
I know what she, and we get from you: Love and support, and often when they’re needed most. Thank you.
* – If you’re reading this in your email, go to http://www.everydayleft.com and please add your thoughts there.