2 Year Anniversary

Well, I did it. I beat the average survival statistic for a patient with a Glioblastoma Multiforme – the deadliest of all the brain tumors. I have brain cancer thanks to the mysterious golf ball size of aggressive malignant cells that grew in my brain. It’s been 2 years since that beast was removed by my brilliant neurosurgeon.

In those 2 years, I’ve gone through chemo and radiation treatments (which ironically has a risk of creating brain tumors) and began a clinical trial intended to train my body to fight the cancer. I’ve had 2 seizures (not counting the first) that have landed me in a hospital bed – the second one being life threatening. I spent months without driving privileges and still managed to get my kids to school and go to the grocery store thanks to my mom and my kind neighbors. My mom’s love and caring have provided my family with a consistent ‘normal’ life and have allowed me to focus on healing and fighting. I have grown even more fond of my neighbors and our spontaneous driveway parties and planned outdoor movie nights. I’ve napped, a lot. I went to New York with my husband. I’ve witnessed his courage, strength and love each and every day. I went to New York, London, and Paris with my family. I’ve read numerous books – most of them good. I met Diana Gabaldon and got her autograph. I lived through a kitchen remodel (not recommended while going through treatment.) I adopted a dog who is both sweet and crazy needy. I’ve watched my children continue to grow and thrive. My son’s guitar skills, love of soccer, creativity, ingenuity and love for some adventure amaze me every day. My daughter’s kindness, persistence at resolving social conflicts, strength in the face of adversity (like soccer ball kicks to her face), her natural skills in caring for young children, and her love of books and learning make my heart swell with pride. I have so many more things to be grateful for as I’ve attempted to live every day left in my life with joy and appreciation for the moments I’ve been blessed to experience in my uncertain future.

But the fight continues on. I’m fighting to still be here to celebrate my 4 year anniversary and my 6 year anniversary and so on…

Thank you all for the love, support, prayers and healing energy you’ve been sending my way over the last 2 years. They’ve gotten me to this point. I’d appreciate the continuing support to get to another anniversary.

As we continue the debate began by Brittany Maynard’s decision to move to a state that supports ‘die with dignity’ laws, let’s not forget the thousands of other people fighting this horrible disease and other types of brain tumors. We should also be discussing what can be done to develop new treatments and search for a cure so we don’t have to think or make decisions about how to relieve our own suffering in our last moments of life. Many of us with GBM’s have survived for extended periods of time, even if we received grim and specific prediction of the time we’ve got left. Fight on and see what miracles arrive and do your part to help others live longer in the future.

If you feel compelled to help focus on the brain tumor element of this story (not saying the national dialogue around ‘die with dignity’ is unworthy or less important), make a donation to the National Brain Tumor Association or any other organization of your choice that helps support research for treatments and cures, support for families and patients, and raise awareness of the other side of Brittany’s story.

 

Thank You!

It’s hard to be an advocate. But it can be done. We can imagine an advocate as someone who travels around the country representing an organization or group of people with a cause. We can imagine an advocate as someone who supports children/families in a court setting when they need a little extra support. We can imagine an advocate who volunteers their time for a cause they feel passionately about. But, you can be an advocate simply by being there, supporting someone you care about, learning more than the surface details and telling people about what an organization is there for, walking in an awareness driven 5K, or making a donation to a non-profit of your choice.

Advocacy comes in various forms and each of you can be an advocate with as little or as much time as you wish or have to spend.

With that in mind, I’d like to send out a heart-felt Thank You! to all of you who donated, sent messages of encouragement and support, re-posted messages, helped us raise donations, told friends about the National Brain Tumor Association, and took the time to walk with us this last Saturday in the second annual Silicon Valley 5k.

Team EveryDayLeft Right Left had at least 34 walkers (I’m sure I’m missing someone in my count) and 2 dogs with us. We had family and friends who traveled across the state, across the bay and flew in from out-of-state for a special visit. There are so many more who weren’t able to join us in the walk, but were there in spirit. The support and love we receive every day as we go through this journey always amazes me and I can’t express how grateful we are to have such caring friends and family around us. Your support warms our hearts and fills us with hope.

Our team was the top fundraiser (again) and your donations will go to help develop programs to support families, raise awareness, and contribute to research for new treatments and hopefully a cure.

When I walked (and talked) last year, I hoped I would be alive to attend again this year. Well, I’m still here and look forward to attending next year!

With all of our hearts, we thank you!

Team EveryDayLeft Right Left walking for hope.

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